Dembot - Latest Comments in Open Letter to James C. Mullen, CEO of Biogen

Re: Open Letter to James C. Mullen, CEO of Biogen

Joshssmar32 — Mon, 28 Nov 2011 06:03:56 -0000

keyword

Re: Open Letter to James C. Mullen, CEO of Biogen

Martin Miller — Wed, 26 Oct 2011 06:07:07 -0000

YAY!
--martin

Re: Open Letter to James C. Mullen, CEO of Biogen

meme — Tue, 05 Oct 2010 05:37:17 -0000

Great post , like to read about medicine
http://www.memetor.com

Re: Open Letter to James C. Mullen, CEO of Biogen

download easy a — Sun, 05 Sep 2010 13:48:04 -0000

If I were you, I'd pressure the doctors more to use it off label.

And I'm sorry if I don't understand the details of your particular situation and this advice isn't useful. Having lost both of my parents, I know how frustrating and difficult this time must be for you.

If for some reason I don't understand it is in the hands of Biogen, they shouldn't be blocking you.

Re: Open Letter to James C. Mullen, CEO of Biogen

Nick — Thu, 15 Oct 2009 00:24:33 -0000

You are a scumbag if you are promoting this as a cure for cancer. How dare you?

Re: Open Letter to James C. Mullen, CEO of Biogen

Steven Chang — Wed, 06 May 2009 14:05:48 -0000

I know a good alternative treatment for this cancer:

http://www.treat-cancer.info/

Good luck!

Re: Open Letter to James C. Mullen, CEO of Biogen

Steven Chang — Wed, 06 May 2009 14:02:37 -0000

I know a good alternative treatment for this cancer:

http://www.treat-cancer.info/

Good luck!

Re: Open Letter to James C. Mullen, CEO of Biogen

Wendy Hilleary — Thu, 01 Jan 2009 02:26:10 -0000

Andrew,
Please let me know how your father is doing. My father also has multiple myeloma (aged 62).
Thanks,
Wendy Hilleary

Re: Open Letter to James C. Mullen, CEO of Biogen

Richard J. Haas — Tue, 28 Oct 2008 13:42:58 -0000

Andrew;

In a sense your family's struggle parallels a struggle my family endured and was resolved by the incredible work of the Mayo Clinic. My deepest concern and all of my prayers are with you and with your mom and dad. I still suffer for the impact my situation imosed on my kids. So my thoughts are with you. Your dad helped me out once and got me in to see John Edwards. I doubt that your mom or dad would recal me but I will always regard them and their work with appreciation and grattitude. It seems like a hollow offer but if there is anything I could do from this time out I would like to be part of the spiritual power that seems to come together when miracles are needed. If there is a place to hope for miracles the Mayo clinic is sure a super spot. Stay strong and remember all the reasons why your mom and dad are loved by so many. I am just one but one who would do my part in battle for them were I only told how

I have heard no news since October 18, 2008 and they are in my thoughts.
.
Richard J. Haas

Re: Open Letter to James C. Mullen, CEO of Biogen

Testuser — Thu, 23 Oct 2008 10:22:25 -0000

In Ireland is already one clinical trail running.

http://www.fiercebiotech.co...

Re: Open Letter to James C. Mullen, CEO of Biogen

Shava Nerad — Tue, 21 Oct 2008 00:32:41 -0000

I am so sorry I didn't hear about this earlier, but glad you got access. I live in Cambridge, MA, and could have gotten a crew of activists and/or geeks to arrange for media coverage of a protest at their offices. Sometimes people need a good reason that dealing with the situation is easier than not dealing.

Prayers/vibes with you and your family.

Re: Open Letter to James C. Mullen, CEO of Biogen

rolled — Sun, 19 Oct 2008 19:23:15 -0000

It was not Biogen that "arranged" for the drug to be limited to approved uses, but the FDA that does so.

Biogen does have MM trials ongoing now - open label and a limited # of patients (42 I think.)

Re: Open Letter to James C. Mullen, CEO of Biogen

Stacey — Sat, 18 Oct 2008 10:58:52 -0000

Jeremy,
My father was diagnosed with Multiple Myeloma this past Feb. If you don't mind could you email me. I have questions and concerns that maybe you could help me with this terrible condition my dad is going through.

Re: Open Letter to James C. Mullen, CEO of Biogen

Lawana Wright — Fri, 17 Oct 2008 23:14:51 -0000

So very thankful your Dad received the drug...FINALLY!!!! Please keep us updated on your Dad's condition and he will be in my prayers for a speedy recovery. Thank God for his helping hand in this situation also!! Special thanks to all those that took their time and influence to get your Dad the medicine he so badly needed! My son told me earlier this evening about your letter in the Dallas Newspaper and we were all concerned about your ordeal and your struggle to save your Dad's life. Your determination and all your efforts, even when it seemed a losing battle, resulted in "justice" being done in this matter. Your Dad should be very proud of you ......and I'm very sure that he is. Best of health to your Dad in the near future. I understand how you feel because my husband also suffers from this horrible disease. Sincerely

Re: Open Letter to James C. Mullen, CEO of Biogen

Scorpaen — Fri, 17 Oct 2008 15:39:36 -0000

I have no health insurance and if I were in Mr. Barron's place, I'd be a dead man.

http://astechnology.blogspo...

Re: Open Letter to James C. Mullen, CEO of Biogen

Wendell Wood — Fri, 17 Oct 2008 14:04:41 -0000

Hope TYSABRI along with the good folks at the MAYO CLINIC, helps save your dad's life! When your dad gets better, perhaps he can help the MAYO CLINIC publicize the TYSABRI clinical trials for myeloma.
Right now, the MAYO CLINIC doesn't even show on it's clinical trials website that there is a trial with TYSABRI for myeloma. Nor does the clinicaltrials.gov website for the "natalizumab trial for myeloma" mention either the MAYO CLINIC or TYSABRI....
....so I wonder how others might sign up....when your dad improves.
Wendell Wood, Fairborn, OH

Re: Open Letter to James C. Mullen, CEO of Biogen

Dave — Fri, 17 Oct 2008 14:03:16 -0000

Can we please get an update?

He received Tysabri a day ago. Is he seeing improvement yet.

Re: Open Letter to James C. Mullen, CEO of Biogen

stevie — Fri, 17 Oct 2008 11:08:04 -0000

Money speaks.

In US, there is alway a double standard: One for the rich and another for poor.

If fred dies or comes down with PML, then Tysabri will be sheeet city. Reuters will headline:

"Tysabri Kills Again!"

Re: Open Letter to James C. Mullen, CEO of Biogen

Patrick Boggs Jr. — Fri, 17 Oct 2008 11:06:00 -0000

Andrew,
I sympathize with you as I lost my father to multiple myeloma just last month. Not a day goes by with out me questioning wether he would still be with us if I had pushed the doctors to be more agressive with his treatment. I can honestly say that without a doubt your persistance has has extended your fathers life to the fullest extent. Bless you and your family at this very difficult time.

Re: Open Letter to James C. Mullen, CEO of Biogen

TomKurtMD — Fri, 17 Oct 2008 10:42:06 -0000

Congratulations Fred & Lisa on obtaining Tysabri! Our hearts are with you. Dr. Tom & Carol Kurt

Re: Open Letter to James C. Mullen, CEO of Biogen

Ed Berliner — Fri, 17 Oct 2008 10:09:09 -0000

I am an old fraternity brother of your father's. I only found out by reading in the paper that your father is in very grave condition. My families thoughts and prayers are with you and of course Fred in hopes that this drug is the miracle that you seek. If there is anything I can do please don't hesitate to call me, I can be reached at my cell number 512-775-4256. I am in Austin and at your service. Edward Berliner.

Re: Open Letter to James C. Mullen, CEO of Biogen

Shafford McKinney — Fri, 17 Oct 2008 00:45:04 -0000

Andrew:
My wife, Maria, takes care of your Mom's skin...We are praying for a miracle for your Dad! I met your Dad at the last Christmas Party, he and Lisa are very generous and kind to my wife and I. We are pulling for you guys!!!
Yours in Christ,
Shafford and Maria McKinney

Re: Open Letter to James C. Mullen, CEO of Biogen

Deece — Thu, 16 Oct 2008 20:39:48 -0000

Andrew, I have know Fred and Lisa for years and they have been wonderful, generous friends. I've been distraught since I heard how ill he was and am delighted to hear he's being given a chance to try Tysabri. I hope for the best outcome of the treatment.

You and the family are in my thoughts and prayers.

Re: Open Letter to James C. Mullen, CEO of Biogen

ESP — Thu, 16 Oct 2008 20:33:32 -0000

correction, I meant Mr. Baron, I should proof read beore I sent it. sorry

Re: Open Letter to James C. Mullen, CEO of Biogen

Tysabri User — Thu, 16 Oct 2008 19:35:22 -0000

As a person with MS who has experienced the miracle of Tysabri, I wish your father the best in his use of Tysabri. I hope it works as well for him as it has for me. I have not had a relapse in 19 months, since I started Tysabri.

If something happens to take this drug off market again because of the adverse effects that may occur due to off label/ outside of the mandated TOUCH program use, because of your father's use of Tysabri, I hope all his lawyer friends will come and help those of us who are on this drug NOW, and need this drug monthly to keep our vision, mobility and cognitive skills. I went through the withdrawal from market once already and it didn't go well for the MS patients who are now disabled because of the withdrawal from 03/05-07/06.